After the Diagnosis-Getting Started Toolkit
PARENT CHECKLIST
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DIFFERENT TYPES OF EYE CARE PROFESSIONALS – CHOOSING YOUR TEAM
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WHAT TO EXPECT AT THE EYE DOCTOR’S OFFICE
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GETTING ORGANIZED
- Questions to ask your doctor
- Keeping Good Records
- Printable tracking sheet for your child’s eye care information
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CHILDHOOD GLAUCOMA FACT SHEET (HELPFUL TO GIVE TO FAMILY, FRIENDS, TEACHERS)
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DOCTOR’S OFFICE VISITS – TIPS FOR MAKING THEM LESS STRESSFUL & MORE SUCCESSFUL
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CARING FOR A CHILD WITH A CHRONIC DISEASE
- University of Michigan Health System
- Kidshealth.org (dealing with a chronic health condition -written for teens)
- Patient Advocate Foundation
COPING STRATEGIES FOR CHILDREN AND PARENTS
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OBSTACLES TO CARE (INSURANCE, MEDICATION, TRANSPORTATION ISSUES) (USA)
- Patient Advocate Foundation Access Resources
- Patient Advocate Foundation Pediatric Resource Center
- Pacer Center – Family to Family Health Information Center
- Pacer Center – Possibilities: A Financial Resource for Parents of Children with Disabilities
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SUPPORT GROUPS FOR PARENTS OF CHILDREN WITH GLAUCOMA OR VISION IMPAIRMENT
- Congenital Glaucoma Network (International Organization)
- Pediatric Glaucoma and Cataract Family Association (International Organization)
- The Glaucoma Foundation (USA)
- International glaucoma Association (UK)
- Parent to Parent (USA)
- National Association for Parents of Children with Visual Impairments (USA)
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EYE CHANGES TO LOOK FOR – WHAT AND WHEN TO TELL YOUR DOCTOR (pdf)
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